Page 69 - Petelin, Ana, Nejc Šarabon, Boštjan Žvanut, eds. 2017. Zdravje delovno aktivne populacije ▪︎ Health of the Working-Age Population. Zbornik povzetkov z recenzijo ▪︎ Book of Abstracts. Koper: Založba Univerze na Primorskem/University of Primorska Press
P. 69
-diagnosed. This means that women have been exposed to invasive diag- 4. znanstvena in strokovna konferenca z mednarodno udeležbo 67
nostic procedure, but actually they do not need. The risk of a false positive re-
sult in younger women is 61.3% and 49.7% in older women. For women under
50 years the additional methods are also the ultrasound and MRI. Descriptive
method will be used to critically assess domestic and foreign scientific litera-
ture.
Key words: breast cancer, mammography, screening, DORA
Reproduktivno zdravstveno varstvo žensk z intelektualno oviro
Reproductive health care of women with intellectual disabilities
Irena Ceglar
Care and working centre Tončka Hočevar, Vodnikova 56, 1000 Ljubljana
irena.ceglar@siol.net
Izhodišča: Ženske z intelektualno oviro so vedno imele otroke, s sodobnimi
procesi vključevanja v večinsko družbo jih ima otroke čedalje več. Ženske z in-
telektualno oviro potrebujejo specializirane zdravstvene storitve za ohranjan-
je reproduktivnega zdravja. Osrednje raziskovalno vprašanje je bilo: ali se na
ženske z intelektualno oviro gleda kot na osebe, ki niso sposobne imeti otro-
ka. Metode: Uporabljena je bila kvalitativna metodologija. Opravljeni so bili po-
globljeni intervjuji z 12 materami, ki imajo intelektualno oviro, in ki so vključene
v slovenske varstveno delovne centre. Rezultati: Izsledki kvalitativne raziskave
kažejo na to, da tradicionalna prepričanja, da ženske z intelektualno oviro ne
morejo biti matere, vplivajo na kakovost in obseg njihove priprave na materin-
stvo, med drugim tudi na preventivne in kurativne zdravstvene storitve. Diskus-
ija in zaključki: Matere z intelektualno oviro lahko dovolj dobro skrbijo za svoje
otroke in živijo skupaj z njimi, če imajo na voljo ustrezno podporo. Ugotovitve
prispevajo novo znanje in razmislek o potrebi po strokovni podpori, na podlagi
česar se lahko oblikujejo priporočila in oblikovanje novih praks podpor mamam
z intelektualno oviro v njihovih okoljih.
Ključne besede: materinstvo, intelektualna ovira, zdravstvene storitve
Introduction: Women with intellectual disabilities have always had children, and
with the modern processes of integration into mainstream society, more and
more people with intellectual disabilities have children. Women with intellectu-
al disabilities need specialized medical services to preserve their reproductive
health. Methods: Qualitative methodology was used. 12 research interviews
with mothers with intellectual disabilities, who are users of Slovenian institu-
tions for people with intellectual disabilities, were conducted. One of the main
research questions was: are women with intellectual disabilities perceived as
people who are unable to have children. Results: Results suggest that the tra-
ditional beliefs that women with intellectual disabilities cannot be mothers af-
fect the quality and scope of their preparation for motherhood, including pre-
ventive and curative reproductive health services. Dicussions and Conclusions:
Mothers with intellectual disabilities, who have a proper support, are able to
adequately care for their children and live with them. The findings contribute
new knowledge and reflection on the need for professional support, on the
basis of which recommendations can be made as well as the creation of new
nostic procedure, but actually they do not need. The risk of a false positive re-
sult in younger women is 61.3% and 49.7% in older women. For women under
50 years the additional methods are also the ultrasound and MRI. Descriptive
method will be used to critically assess domestic and foreign scientific litera-
ture.
Key words: breast cancer, mammography, screening, DORA
Reproduktivno zdravstveno varstvo žensk z intelektualno oviro
Reproductive health care of women with intellectual disabilities
Irena Ceglar
Care and working centre Tončka Hočevar, Vodnikova 56, 1000 Ljubljana
irena.ceglar@siol.net
Izhodišča: Ženske z intelektualno oviro so vedno imele otroke, s sodobnimi
procesi vključevanja v večinsko družbo jih ima otroke čedalje več. Ženske z in-
telektualno oviro potrebujejo specializirane zdravstvene storitve za ohranjan-
je reproduktivnega zdravja. Osrednje raziskovalno vprašanje je bilo: ali se na
ženske z intelektualno oviro gleda kot na osebe, ki niso sposobne imeti otro-
ka. Metode: Uporabljena je bila kvalitativna metodologija. Opravljeni so bili po-
globljeni intervjuji z 12 materami, ki imajo intelektualno oviro, in ki so vključene
v slovenske varstveno delovne centre. Rezultati: Izsledki kvalitativne raziskave
kažejo na to, da tradicionalna prepričanja, da ženske z intelektualno oviro ne
morejo biti matere, vplivajo na kakovost in obseg njihove priprave na materin-
stvo, med drugim tudi na preventivne in kurativne zdravstvene storitve. Diskus-
ija in zaključki: Matere z intelektualno oviro lahko dovolj dobro skrbijo za svoje
otroke in živijo skupaj z njimi, če imajo na voljo ustrezno podporo. Ugotovitve
prispevajo novo znanje in razmislek o potrebi po strokovni podpori, na podlagi
česar se lahko oblikujejo priporočila in oblikovanje novih praks podpor mamam
z intelektualno oviro v njihovih okoljih.
Ključne besede: materinstvo, intelektualna ovira, zdravstvene storitve
Introduction: Women with intellectual disabilities have always had children, and
with the modern processes of integration into mainstream society, more and
more people with intellectual disabilities have children. Women with intellectu-
al disabilities need specialized medical services to preserve their reproductive
health. Methods: Qualitative methodology was used. 12 research interviews
with mothers with intellectual disabilities, who are users of Slovenian institu-
tions for people with intellectual disabilities, were conducted. One of the main
research questions was: are women with intellectual disabilities perceived as
people who are unable to have children. Results: Results suggest that the tra-
ditional beliefs that women with intellectual disabilities cannot be mothers af-
fect the quality and scope of their preparation for motherhood, including pre-
ventive and curative reproductive health services. Dicussions and Conclusions:
Mothers with intellectual disabilities, who have a proper support, are able to
adequately care for their children and live with them. The findings contribute
new knowledge and reflection on the need for professional support, on the
basis of which recommendations can be made as well as the creation of new
